Social Determinants of Autism in the U.S.: Conceptualizing a Public Health Analytics Framework to Address Health Disparities

References

[1] ADDIN EN.REFLIST Adelodun, M. O., & Anyanwu, E. C. (2024). Health Effects of Radiation: An Epidemiological Study on Populations near Nuclear Medicine Facilities. Health, 13(9), 228-239.

[2] Ahmed, Z., Mohamed, K., Zeeshan, S., & Dong, X. (2020). Artificial intelligence with multi-functional machine learning platform development for better healthcare and precision medicine. Database, 2020, baaa010.

[3] Barrio, B. L., Hsiao, Y.-J., Prishker, N., & Terry, C. (2019). The impact of culture on parental perceptions about autism spectrum disorders: Striving for culturally competent practices. Multicultural Learning and Teaching, 14(1), 20160010.

[4] Bilaver, L. A., & Havlicek, J. (2019). Racial and ethnic disparities in autism-related health and educational services. Journal of Developmental & Behavioral Pediatrics, 40(7), 501-510.

[5] Chihuri, S., Blanchard, A., DiGuiseppi, C. G., & Li, G. (2023). Epidemiologic Patterns of Autism Spectrum Disorder in Pediatric Inpatients in the United States, 1997–2019. Journal of Autism and Developmental Disorders, 1-9.

[6] de Leeuw, A., Happé, F., & Hoekstra, R. A. (2020). A conceptual framework for understanding the cultural and contextual factors on autism across the globe. Autism research, 13(7), 1029-1050.

[7] Donohue, M. R., Childs, A. W., Richards, M., & Robins, D. L. (2019). Race influences parent report of concerns about symptoms of autism spectrum disorder. Autism, 23(1), 100-111.

[8] Drahota, A., Sadler, R., Hippensteel, C., Ingersoll, B., & Bishop, L. (2020). Service deserts and service oases: Utilizing geographic information systems to evaluate service availability for individuals with autism spectrum disorder. Autism, 24(8), 2008-2020.

[9] Green, J., Leadbitter, K., Ainsworth, J., & Bucci, S. (2022). An integrated early care pathway for autism. The Lancet Child & Adolescent Health, 6(5), 335-344.

[10] Hairston, D. R., Gibbs, T. A., Wong, S. S., & Jordan, A. (2019). Clinician bias in diagnosis and treatment. Racism and psychiatry: Contemporary issues and interventions, 105-137.

[11] Hirota, T., & King, B. H. (2023). Autism spectrum disorder: a review. Jama, 329(2), 157-168.

[12] Hus, Y., & Segal, O. (2021). Challenges surrounding the diagnosis of autism in children. Neuropsychiatric disease and treatment, 3509-3529.

[13] Joudar, S. S., Albahri, A. S., & Hamid, R. A. (2022). Triage and priority-based healthcare diagnosis using artificial intelligence for autism spectrum disorder and gene contribution: a systematic review. Computers in Biology and Medicine, 146, 105553.

[14] Joudar, S. S., Albahri, A. S., Hamid, R. A., Zahid, I. A., Alqaysi, M. E., Albahri, O. S., & Alamoodi, A. H. (2023). Artificial intelligence-based approaches for improving the diagnosis, triage, and prioritization of autism spectrum disorder: a systematic review of current trends and open issues. Artificial Intelligence Review, 56(Suppl 1), 53-117.

[15] Keikhosrokiani, P. (2022). Big data analytics for healthcare: datasets, techniques, life cycles, management, and applications: Academic Press.

[16] Kelvin-Agwu, M. C., Adelodun, M. O., Igwama, G. T., & Anyanwu, E. C. (2024a). Innovative approaches to the maintenance and repair of biomedical devices in resource-limited settings.

[17] Kelvin-Agwu, M. C., Adelodun, M. O., Igwama, G. T., & Anyanwu, E. C. (2024b). Strategies For Optimizing The Management Of Medical Equipment In Large Healthcare Institutions. Strategies, 20(9), 162-170.

[18] Lord, C., Charman, T., Havdahl, A., Carbone, P., Anagnostou, E., Boyd, B., . . . Divan, G. (2022). The Lancet Commission on the future of care and clinical research in autism. The Lancet, 399(10321), 271-334.

[19] Majebi, N. L., Adelodun, M. O., & Anyanwu, E. C. (2024a). Early childhood trauma and behavioral disorders: The role of healthcare access in breaking the cycle.

[20] Majebi, N. L., Adelodun, M. O., & Anyanwu, E. C. (2024b). Integrating trauma-informed practices in US educational systems: Addressing behavioral challenges in underserved communities.

[21] Malik-Soni, N., Shaker, A., Luck, H., Mullin, A. E., Wiley, R. E., Lewis, M., . . . Frazier, T. W. (2022). Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood. Pediatric Research, 91(5), 1028-1035.

[22] Martin, C. L., Ghastine, L., Lodge, E. K., Dhingra, R., & Ward-Caviness, C. K. (2022). Understanding health inequalities through the lens of social epigenetics. Annual Review of Public Health, 43(1), 235-254.

[23] McCormack, G., Dillon, A. C., Healy, O., Walsh, C., & Lydon, S. (2020). Primary care physicians’ knowledge of autism and evidence-based interventions for autism: A systematic review. Review Journal of Autism and Developmental Disorders, 7(3), 226-241.

[24] Papoudi, D., Jørgensen, C. R., Guldberg, K., & Meadan, H. (2021). Perceptions, experiences, and needs of parents of culturally and linguistically diverse children with autism: a scoping review. Review Journal of Autism and Developmental Disorders, 8(2), 195-212.

[25] Paul, S. G., Saha, A., Hasan, M. Z., Noori, S. R. H., & Moustafa, A. (2024). A systematic review of graph neural network in healthcare-based applications: Recent advances, trends, and future directions. IEEE Access.

[26] Pham, A. V., & Charles, L. C. (2023). Racial disparities in autism diagnosis, assessment, and intervention among minoritized youth: Sociocultural issues, factors, and context. Current psychiatry reports, 25(5), 201-211.

[27] Rakap, S. (2024). Chatting with GPT: Enhancing individualized education program goal development for novice special education teachers. Journal of Special Education Technology, 39(3), 339-348.

[28] Ramgopal, S., Sanchez-Pinto, L. N., Horvat, C. M., Carroll, M. S., Luo, Y., & Florin, T. A. (2023). Artificial intelligence-based clinical decision support in pediatrics. Pediatric Research, 93(2), 334-341.

[29] Shenouda, J., Barrett, E., Davidow, A. L., Sidwell, K., Lescott, C., Halperin, W., . . . Zahorodny, W. (2023). Prevalence and disparities in the detection of autism without intellectual disability. Pediatrics, 151(2).

[30] Smith-Young, J., Chafe, R., & Audas, R. (2020). “Managing the wait”: Parents’ experiences in accessing diagnostic and treatment services for children and adolescents diagnosed with autism spectrum disorder. Health services insights, 13, 1178632920902141.

[31] Soyombo, D. A., Kupa, E., Ijomah, T. I., & Stephen, A. (2024). Food security challenges: A comparative review of USA and African Policies.

[32] Stadnick, N. A., Aarons, G. A., Martinez, K., Sklar, M., Coleman, K. J., Gizzo, D. P., . . . Brookman-Frazee, L. (2022). Implementation outcomes from a pilot of “Access to Tailored Autism Integrated Care” for children with autism and mental health needs. Autism, 26(7), 1821-1832.

[33] Stadnick, N. A., Brookman-Frazee, L., Mandell, D. S., Kuelbs, C. L., Coleman, K. J., Sahms, T., & Aarons, G. A. (2019). A mixed methods study to adapt and implement integrated mental healthcare for children with autism spectrum disorder. Pilot and feasibility studies, 5, 1-9.

[34] Uddin, M., Wang, Y., & Woodbury-Smith, M. (2019). Artificial intelligence for precision medicine in neurodevelopmental disorders. NPJ digital medicine, 2(1), 112.

[35] Wallisch, A., Boyd, B. A., Hall, J. P., Kurth, N. K., Streed Jr, C. G., Mulcahy, A., . . . Batza, K. (2023). Health care disparities among autistic LGBTQ+ people. Autism in Adulthood, 5(2), 165-174.

[36] Yingling, M. E., Ruther, M. H., Dubuque, E. M., & Mandell, D. S. (2021). County-level variation in geographic access to board certified behavior analysts among children with autism spectrum disorder in the United States. Autism, 25(6), 1734-1745.

[37] Zeleke, W. A., Hughes, T. L., & Drozda, N. (2019). Disparities in diagnosis and service access for minority children with ASD in the United States. Journal of Autism and Developmental Disorders, 49, 4320-4331.

[38] Zhan, X.-L., Pan, N., Karatela, S., Shi, L., Wang, X., Liu, Z.-Y., . . . Lin, L.-Z. (2023). Infant feeding practices and autism spectrum disorder in US children aged 2–5 years: the national survey of children’s health (NSCH) 2016–2020. International breastfeeding journal, 18(1), 41.

@article{1706656,
      author = {Omotoke Modinat Drakeford, Nkoyo Lynn Majebi},
      title = {Social Determinants of Autism in the U.S.: Conceptualizing a Public Health Analytics Framework to Address Health Disparities},
      journal = {Iconic Research And Engineering Journals},
      year = {2024},
      volume = {8},
      number = {6},
      pages = {264-273},
      issn = {2456-8880},
      url = {https://www.irejournals.com/formatedpaper/1706656.pdf},
      abstract = {Autism spectrum disorder (ASD) is a neurodevelopmental condition with significant disparities in diagnosis, treatment, and outcomes in the United States. These disparities are shaped by social determinants of health (SDOH), including socioeconomic status, access to healthcare, geographic location, racial and ethnic inequalities, and cultural perceptions. This paper proposes a conceptual public health analytics framework to address these inequities. The framework integrates clinical, demographic, and SDOH sources data to identify patterns and gaps in autism care, employs predictive modeling to allocate resources efficiently, and emphasizes community engagement to ensure culturally sensitive interventions. Policy alignment is also highlighted to translate data insights into actionable reforms for equitable autism care. By addressing SDOH through innovative public health analytics, this framework offers a scalable and adaptable solution to mitigate health disparities, improve early diagnosis, and foster inclusivity in autism care. The findings underscore the importance of interdisciplinary collaboration, robust data systems, and community-driven approaches to achieve equitable outcomes for individuals with autism.},
      keywords = {Autism spectrum disorder (ASD), Social determinants of health (SDOH), Health disparities, Public health analytics, Predictive modelling, Equitable healthcare},
      month = {December},
  }